Remission News
by Dale and Toni Barringer; Marlene and Bill Stern

These very brief patient profiles are intended to let you know that some of those with RRP are doing quite well.

Sixteen year old Todd, who now lives in Florida,has been in remission since 1999. He was never very aggressive, having 8 surgeries since his diagnosis in 1989, but his Mom credits interferon with slowing down the disease.

Carina from Washington, who is now 24 years old has been in remission since the age of 7. She developed RRP very early on whe she was only a few months old. Her disease was very aggressive with surgeries every 2-4 weeks and she was trached as well. At the age of 7 , without any adjunct treatments, her RRP went into spontaneous remission.

Others still in remission (who we were able to contact) include: Ten year old Ariel, 12 year old Jonathon and Bill age 53 from California; 27 year old Julie and 28 year old Steph from Florida; Mike from Georgia at age 49; Jeff age 54 and William age 77, from Illinois; Fifteen year old Kim from Maryland, Cara from Michigan at age 19; Ten year old John David from Missouri; Leah from New Hampshire, age 22; 12 year old Lindsay from New Jersey; Joe from Ohio at age 35; Ralph at age 75 and 3 year old Mitchell from Pennsylvania; Nancy, age 35, from Texas; and from Virginia, Alison age 11 and Smokey, age 30. Of this group in remission about 2/3 have attributed their remission to some forms of adjunct therapy, the most common being I3C and/or DIM. Other therapies included interferon, cidofovir, acyclovir and mumps vaccine.

[Please let us know if you are in remission, we will happily add your name to our growing list.]